Tag: challenge

Saturday, May 9th, 2009

Motherhood and Rheumatoid Arthritis

From as far back as I can remember I wanted to be a mother.  Like a lot of little girls I used to pretend to be a mommy all the time.  It was my fondest wish.  My husband and I tried for a very long time (6 years) before we were blessed with the birth of our first son Alexander.  And 4 years later again we were again given the joy of another boy, Nathan.  And finally 5 1/2 years after Nathan was born we were given another beautiful baby boy, Kevin.  All of my children were born before I was diagnosed with rheumatoid arthritis(RA).  About 6 months after Kevin was born I started experiencing symptoms of RA.  It took another 6 months to get a diagnosis. Continue reading Motherhood and Rheumatoid Arthritis

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Sunday, April 26th, 2009

Rheumatoid Arthritis and Marriage

weddingbellsMy nephew got married yesterday.  I wish for Russ and his new bride Cassi a lifetime of much joy and happiness .  The ceremony was lovely  and mother nature blessed the happy couple with a beautiful  spring day. While I watched the two exchange their vows I couldn’t help but reflect back on my own wedding day 23 years ago. When Eric and I  took our vows to love and honor each other through sickness and health,  neither of us could have anticipated how young we would be when sickness would become an such a life altering concern.

I chose an incredible man to share my life with.  It is when life is at it’s most trying that you really know the measure of a partner and the quality of a relationship.  Living with someone who has a chronic disease can be more than a challenge.  Watching someone that you love in pain is difficult and can be frustrating because there is nothing you can do to “fix it”.

Eric has quite literally picked me up when I fell down and lifted my spirits with his positivity and good humor.  He has been patient with me when I could not be patient with my own body and it’s limitations . He has accepted the challenges that rheumatoid arthritis has brought to our lives without complaint and with a quiet strength that reassures me that ultimately everything will be alright.

Rheumatoid arthritis has changed not only my life but the lives of those that love me as well. While I have changed both physically and spiritually while dealing with the challenges this disease has brought, my husband Eric has remained the steady, calming force that has enabled me to face this journey with positivity and hopefully some grace. To say that I married my best friend is an understatement.  I know that I would not be living as well with rheumatoid arthritis were it not for his support and love.

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Tuesday, April 14th, 2009

What Rheumatoid Arthritis Has Taught Me: Lesson #3 Gratitude

Why is it sometimes that we don’t appreciate what we have until it is gone?  I know that I did not value the joy of a good run before I came down with RA.  I wish I had appreciated it when I could still do it.  There are many things that I should have been grateful for when my body worked effortlessly. The lesson that RA taught me: Gratitude.

I could choose to be angry or resentful that I can no longer do the physical things that I used to. That would be looking backward at something I cannot change. I choose to be grateful for what I have today.  I try to take nothing for granted.  I can never tell which joint will be effected on any given day so I really need to be grateful for the ones that work today. Tomorrow they may be painful and not move very well.

When I think of gratitude, to me it means assessing value in everyday things.  Sometimes it is the smallest things that I am most grateful. For example I am grateful for the sun, the way that it warms my skin and nourishes my body. I am grateful for the way the laundry smells when it first comes out of the dryer.  And sometimes it’s the bigger more important things that I am most grateful for such as  my husband , who has loved me for over 25 years and makes me laugh almost everyday or my kids, each one so incredibly unique and amazing.

I started with the small things.  I was grateful that my feet did not hurt as much as yesterday.  I was grateful that I didn’t have to go up and down the stairs a second time.  Somehow  the more that I acknowledged all that I have been given, the more that was given to me and the less I needed external things to fill my life.  I  really have all that I need.  I am loved and I have so many to love. Everything else is a bonus. The fact that my body does not look or act the way that it used to is not as important as it once was.

Sooner or later everyone will have to deal with the fact that their physical body is not what it was in its youth.  Because I have rheumatoid arthritis I have challenges that have presented themselves earlier in my life than someone who doesn’t have this disease but there is nothing that I can do about that. Every person has their own issues, their own stuff that they have to deal with. No life goes without challenges.

In learning the true meaning of gratitude, there has been a shift in my focus from what I thought I wanted to the abundance in my life. It feels like being given a new pair of glasses to see the world with clarity. For this I am immensely grateful.

“Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend. Gratitude makes sense of our past, brings peace for today, and creates a vision for tomorrow.”
~ Melody Beattie ~

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Saturday, February 7th, 2009

Simple Solutions to Everyday RA Problems: Turning a Knob

For people like me with Rheumatoid Arthritis ( RA ) the simple act of turning a faucet or a door handle can be a challenge.  Changing the door handle to a lever is a simple relatively cheap solution to opening a door without help.  There are some adapters that can be retro-fit to certain door handles so that they become a lever.  Many homes have faucet handles that need to be twisted to turn the water on and off.  Try replacing them with a newer fixture that has a wide handle that can be pushed or pulled to turn the water on and off.  They even have new touch-less faucets that is motion activated.  Check with your local plumber or handyman for all the options that are available in your area.

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