Category Archives: Coping

LivingRheum is Going Green for Lyme Disease Awareness Month

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The past four years I have spent talking about how to live well with chronic disease.The mission of this blog was to talk about not only living with chronic disease, but living as well as you can with it.

Initially I thought I had RA (Rheumatoid Arthritis). I received a diagnosis in 2001 and I trusted the doctors.

I have learned a lot since then. A lot about myself, RA and Lyme disease.

In trusting the medical professionals more than myself, I spent 9 years being treated for a disease I never had. While other deadly diseases were wreaking havoc throughout my entire body. And to add insult to injury, the treatments that were supposed to help me actually made my body  the perfect host for these bacteria.

What I actually had (and still do) is Lyme disease (Borrelia Burgdorferi), Babesia and Protomyxzoa Rheumatica (AKA FL1953 or “The Fry Bug:)

That’s a mouthful for sure.

All three diseases are parasitic diseases that attack the joints, the central nervous system, the heart, eyes, lungs, stomach, intestines, liver, uterus and spleen just to name a few.

These are serious diseases that have been marginalized by the medical community for far too long. The result has been thousands of people suffering needlessly for years unable to get a correct diagnosis.

There are many reasons for the failings in the medical community most of which are discussed in the documentary Under Our Skin. I would strongly suggest that everyone, whether you are sick or not, watch this movie. It truly is an enlightening film.

So in honor of all my fellow Lyme Warriors and in memory of all those who fought so hard only to eventually succumb to this insidious disease, for Lyme disease awareness Month, LivingRheum.com is going green for the month of May. And I will try to share as much information about this and other vector-borne infectious diseases as I can.

Product Review: THERA-GESIC Pain Relieving Creme

Recently I was contacted by a representative for THERA-GESIC. I was asked if I was interested in trying their product.

Well I’m always up for trying something new so I said yes.

The product arrived the next day and as luck would have it I was in need of some relief from my aching muscles and joints. Lucky for me they sent the Maximum Strength formula, because I was really feeling awful.

I have to admit, I have tried many pain relieving rubs with varying degrees of success. I had never tried this brand before so I wasn’t sure what to expect.

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Arthritis Friendly Prescription Bottle Covers?

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So I request the arthritis friendly covers for my prescription bottles. Sometimes I get them, sometimes I don;t. So I’ve made it a point to keep a few extras around the house in various bottle sizes just in case the pharmacy forgets.

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What To Do If You’re Not Happy With Your Rheumatologist

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What should you do if you’re not happy with your rheumatologist?

Well, there are a few things you can do. First off, I would talk to them. Sometimes it can be hard to find a new doctor, so it might be a good idea to try and resolve your issues with your current doctor. Explain the problems that you’re having and why you’re not happy. Remember that they work for you. It is their job to help you in the best way that they can. But they are human too, and may not realize how they may be making you unhappy. So give them the opportunity to be a better doctor for you and tell them what is bothering you.

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Kitchen Gadgets for Arthritic Hands

Ten years of uncontrolled inflammation has done its damage and my hands no longer work the way that they should. I find that sometimes it’s the simple things that I can’t do that can be the most frustrating.

For me opening a zippered plastic bag is almost impossible. I usually just get frustrated and grab some scissors and cut the thing open and then use one of those slide bags to store the contents in the future.

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Hope and Chronic Illness

 

 

I had to share this quote, because it really speaks to me.

“There is no medicine like hope”

Wow.

Doesn’t that say so much?

According to Oxford’s Dictionary, hope is defined as “grounds for believing that something good may happen” and “a feeling of trust”. I think that in order to survive any chronic illness you need to have hope. A need to believe and trust that the current situation is just temporary.

I am a realist, I have read all the statistics and studies. I am aware of the scientific opinions. I know what I am dealing with.

But that does not stop me from having hope.

Hope is important.

Without it, what is left?

Hope sustains me. And so, when energy for me is a valuable commodity, I do not waste it. I choose to focus my energy on hope, and what will make getting through the day easier.

I believe that what you put out into the universe to get back. So I put out the belief that there is a cure out there, that another will never know the suffering that I have, that there is a scientist out there with answers to my disease that make sense. And that tomorrow, if even in a small way, is a bit better than today.

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